Care giving takes many
forms. Many of us help older, sick, or disabled family members and friends
every day. We know we are helping, but we don't think of ourselves as
caregivers. We are glad to do this and feel rewarded by it, but if the demands
are heavy, over time we can also become exhausted and stressed. We think we
should be able to handle care giving roles on top of busy work and family
schedules and begin to feel guilty and depressed as our stamina wanes.
About 44 million Americans
provide 37 billion hours of unpaid, "informal" care each year for
adult family members and friends with chronic illnesses or conditions that
prevent them from handling daily activities such as bathing, managing
medications or preparing meals on their own. Family caregivers
, particularly
women, provide over 75% of care giving support in the United States. In 2007,
the estimated economic value of family caregivers' unpaid contributions was at
least $375 billion, which is how much it would cost to replace that care with
paid services.
Impact on Physical and Emotional Health
Recent
medical advances, shorter hospital stays, increasing life spans with better
management of chronic illnesses, limited discharge planning, a shortage of
homecare workers, and the expansion of home care technology have increased the care
giving responsibilities of families. Family caregivers are being asked to
shoulder greater burdens for longer periods of time. In addition to more
complex care, conflicting demands of jobs and family, increasing economic
pressure, and the physical and emotional demands of long-term care giving can
result in major health impacts on caregivers.20
Over
all, caregivers who experience the greatest emotional stress tend to be female.
They are at risk for high levels of stress, frustration, anxiety, exhaustion
and anger, depression, increased use of alcohol or other substances, reduced
immune response, poor physical health and more chronic conditions, neglecting
their own care and have higher mortality rates compared to noncaregivers.21
In
addition, most caregivers are ill-prepared for their role and provide care with
little or no support; yet more than one-third of caregivers continue to provide
intense care to others while suffering from poor health themselves. An
influential factor in a caregiver's decision to place an impaired relative in a
long-term care facility is the family caregiver's own physical health.
Conclusion
With the dramatic aging of
the population, we will be relying even more on families to provide care for
their aging parents, relatives and friends for months and years at a time. Yet,
the enormous pressures and risks of family care giving—burnout, compromised
health, depression and depletion of financial resources—are a reality of daily
life for millions of American families and pose great strain on family
caregivers, many of whom are struggling to balance work and family
responsibilities. Families need information and their own support services to
preserve their critical role as caregivers, but frequently they do not know
where to turn for help. When they do seek assistance, many community agencies
cannot provide adequate supports due to funding constraints and out-dated policies.
The federal government can help by taking steps to ensure that all family
caregivers have access to caregiver assistance and to practical, high quality,
and affordable home and community-based services.
